Post 96: Bounding to Bedbound – Feeling Frustrated, Sad, and Uncertain as a Loved One Loses Their Strength
"He's being lazy. He was fishing a year and half ago. He should be able to get out of bed." "He's being stubborn. He knows what he...
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Jeanne Lee
Dec 10, 20236 min
Post 92: Seven Approaches to Helping a Loved One "Let Go" of Driving
“I don’t think Mom should drive anymore. I tell her, but she doesn’t listen to me!” When I used to conduct palliative care home visits...
Jeanne Lee
Sep 26, 20227 min
Post 76: 10 Children's Books That May Help You Talk About Dying, Death, and Grief
"Can you recommend any books I can read with my kids to help me talk about dying?" is a question I occasionally hear during a palliative...
Jeanne Lee
Sep 10, 202211 min
Post 75: How Palliative Care Can Change a Life - Sliding Doors Moment #2
A “sliding doors moment” is a seemingly inconsequential moment that ultimately affects the trajectory of future events in a dramatic...
Jeanne Lee
Aug 28, 20227 min
Post 74: “Maybe It’s Time to Let Go Of Some Medicines” or Why Your Doctor Might Deprescribe
If we have always equated taking medications with protecting our health – “Take your blood pressure pills. It’ll decrease your risk of...
Jeanne Lee
Aug 15, 20223 min
Post 73: A Personal Note - An Unexpected Connection
Writing this entry is a means of letting out and letting go of one of my frustrations as an advocate. I consider any of us attempting to...
Jeanne Lee
Jun 19, 20226 min
Post 68: 7 Suggestions for Supporting a Demoralized Loved One
We have probably felt demoralized at certain points in our lives: - receiving a "Needs Improvement" on an annual evaluation from your...
Jeanne Lee
Apr 29, 20226 min
Post 63: 4 Steps to Supporting Your Loved One Who is Praying for a “Miracle”
Certain words seem to inspire strong instinctive emotional responses when expressed among patients, family members, doctors, nurses, and...
Jeanne Lee
Apr 23, 20227 min
Post 62: "My Husband Returned from the Hospital Confused! Will He Get Better?" - 4 Considerations
When I used to do home palliative care visits (read Post 1: What Exactly Does a Palliative Care Specialist Do?), I would often see...
Jeanne Lee
Apr 16, 20228 min
Post 61: The "Supportive Family" - Two Perspectives on Support
I stepped into the patient's home as the man behind the door said, "I'm so glad you're here. I don't know what to do." He shut the...
Jeanne Lee
Feb 19, 20225 min
Post 58: "Why Didn't Mom Tell Me She Fell?" - A Common Caregiver Question
"Why would my mom lie to me about her fall? Why would she hide this?" I sat next to the 74 year old woman. Rose was a new patient, and...
Jeanne Lee
Dec 5, 20217 min
Post 50: What about the Hidden Costs? - 10 Potential Expenses of Living with Declining Health
(Many thanks to Erin Nielsen, LCSW, of The Holding Group and Magdalena Belgie, LMSW, for their expert input with this post!) "The...
Jeanne Lee
Nov 20, 20216 min
Post 48: How to Respond When Someone You Love Says, "I Don't Want to be a Burden" - 5 Thoughts
"Mom, you can move in with me," the daughter exclaimed, "You know this." "You're already so busy," her mother replied, "and I don't want...
Jeanne Lee
Nov 7, 20215 min
Post 46: How Being a "Fighter" Can Alter Your Path
The particular nouns, adjectives, and verbs we choose to describe ourselves and our lives can alter how we see ourselves and our...
Jeanne Lee
Oct 31, 20215 min
Post 45: How Can I Encourage My Loved One to Eat? - 8 Tips to Consider
There is more to eating than what someone ingests. Eating is important for obtaining nutrition, and eating usually also holds strong...
Jeanne Lee
Aug 30, 20215 min
Post 42: Thirteen Suggestions for Coping with Caregiving and Decreasing Risk of Burnout
When a person has to adjust to living with a long term or serious illness, advanced disease, or worsening health, those closest to them...
Jeanne Lee
Aug 22, 20217 min
Post 41: Is This Caregiver Burnout? - 20 Signs of Potential Burnout
"I moved in to help my parents. I thought my sister in law would keep coming over to help one day a week, but she stopped as soon as I...
Jeanne Lee
Aug 15, 20217 min
Post 40: Five Key Differences Between Home Health Care and Home (Provider/Caregiver) Care
"Are you here to evaluate my mom for provider services? She needs someone to help her clean the house, do the laundry, and cook. She...
Jeanne Lee
Jul 18, 202113 min
Post 36: A Nursing Home for Dad? - Six Practical Steps to Making a Difficult Decision
"She didn't use the Life Alert button when she fell! What am I going to do if this happens again? I've used up all my days staying with...
Jeanne Lee
Jul 11, 20215 min
Post 35: Grieving Loss (and Change) That is About to Come - Six Coping Suggestions
"The doctor said months. What am I supposed to do with months?! I won't get to be a part of my children's stories. I won't get to meet my...
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